
After years of effort, the Microtia Family Support
Group was formally established in March 1999. With the enthusiastic
support of parent volunteers, the young organization has continually
expanded its services in hopes of shining brighter light into the
lives of microtia sufferers and their families.
Services
1. Telephone Counseling Network
The telephone counseling network set up by Support Group volunteers
provides microtia families with a forum through which to interact
and exchange information with other parents, and to support one
another and swap opinions and experiences on treatment, language,
and parental duties.
2. Clinic Visitations
During clinic hours, parent volunteers share experiences and information
on coping with microtia, providing emotional support and proper
information to parents visiting the clinic for the first time.
3. Telephone Outreach
Parent volunteers make calls to check up on microtia families and
understand their needs, providing emotional support and the latest
information on medical lectures and support group activities.
4. Support Group Activities
Each year the Support Group hosts a variety of activities including
medical lectures, family support meetings, and family activities.
These events encourage interaction among afflicted families and
help children afflicted with microtia to better adapt to society
through broadened interpersonal relations.
5. Microtia Interactive Web
Our Web site at http://microtia.nncf.org
gives microtia families rapid access to valuable medical information
while providing a broader forum for open exchange.
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